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National Neuropathy Week 2009: Focus on Advocacy
You can lend your voice by sharing your experiences with neuropathy, participating in our polls, letter-writing campaigns and advocacy campaigns, and by requesting neuropathy proclamations from your state representatives. By uniting as a single voice through the Association, together, we can demand the critical changes needed for the millions impacted by neuropathy.
Share Your Experiences With Neuropathy
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Read Eugene's Story
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Many people in our community have been writing to us about their fight against neuropathy. They are hopeful--and we are too--that their words can help others understand the challenges of living with neuropathy, provide learning, and bring comfort by knowing they are not alone.
Florida-based support group leader Lt. Col. (Ret.) Eugene B. Richardson recently wrote to us, “Having battled neuropathy for four decades, what has kept me grounded is my openness to adapting to the curve balls this disease has." Share with us your own experience with neuropathy… |
First-Time National Poll Confirms Neuropathy Hits Millions In Their Prim
We are using what you told us about your neuropathy in our polls, “At What Age Did Your Neuropathy Begin” and “What Form of Neuropathy Do You Have?” to generate greater understanding of neuropathy’s impact on our community, healthcare system, and society. Read our press release...
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Age of Neuropathy Onset
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Type of Neuropathy
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Take our new poll: “Which Healthcare Provider Gave You Your Neuropathy Diagnosis?”
Help Us “Stamp Out Neuropathy”
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We are in the midst of our national Stamp Out Neuropathy campaign, hoping to raise $150,000 this spring. The Stamp Out Neuropathy campaign is a fundraising, letter-writing campaign in which we are asking the Association’s neuropathy community--support groups, staff, board of directors, neuropathy Centers of Excellence, supporters, and friends--to write to their families, friends, and colleagues to join our fight against neuropathy. It is also an opportunity to share with them the importance of our work as a community to find a cure for neuropathy. Participate in our Stamp Out Neuropathy campaign... |
National Neuropathy Week Commemorated in Colorado
On May 2, 2009, our Denver chapter received a National Neuropathy Week commemoration from the State of Colorado House of Representatives on the request of Rep. Karen Middleton.
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Healthcare Reform Efforts
Whether attending forums on caring for those with multiple chronic illnesses or lending our support to such efforts as the “National Pain Care Policy Act” and the successfully passed “Genetic Information Nondiscrimination Act (GINA),” we are proactively speaking out about the issues unique to our community.
IVIG Access Advocacy Efforts
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Subsequent to our 2008 grassroots campaign in support of legislative efforts seeking to restore IVIG Medicare patient access, we recently met with Members of Congress and 18 patient advocacy groups to support the new legislation - H.R. 2002, Medicare Patient IVIG Access Act of 2009. Read more… |
Related Stories:
National Pain Care Policy Act Approved by Committee
Senate Passes Historic Bill on Genetic Information Nondiscrimination
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