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Neuropathy
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Neuropathy Association's
Combined Federal
Campaign #17116
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Neuropathy Newsbytes
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July 14 Neuropathy Alert Day Warns Diabetics of Serious Nerve Damage Potential
A resolution sponsored by Senator David Valesky (D-Oneida) and Assembly Member Aileen Gunther (D-Forestburgh) recognizes July 14th as "Diabetic Peripheral Neuropathy Alert Day" in New York State. Peripheral neuropathy results from damage to the motor, sensory and autonomic nerves that connect the spinal cord to muscles, skin, and internal organs. Those with peripheral neuropathy or "nerve damage" experience pain, numbness, weakness, loss of sensitivity, and tingling. Diabetics have a high risk for peripheral neuropathy.
National Neuropathy Week to Feature Empire State Building Lighting
Neuropathy Association Marks the Week and 15 Years of Service with Lighting to Raise Awareness of Chronic Neurological Disease Affecting 20 Million Americans
AAN Guideline Evaluates Treatments for Muscle Cramps
A new guideline from the American Academy of Neurology recommends that quinine, although effective, should be avoided for treatment of routine muscle cramps due to uncommon, but serious, side effects.
American Academy of Neurology Issues Guidelines for TENS
The American Academy of Neurology recently issued new guidelines on the use of transcutaneous electric nerve stimulation (TENS)—a widely used pain therapy involving a portable device—stating that it is not recommended for the treatment of chronic low-back pain because research shows it is ineffective. It also states that TENS can be effective in treating diabetic nerve pain, but more and better research is needed to compare TENS to other treatments for this type of pain.
Your Association Supports Pro-Neurology Amendment
The Patient Protection and Affordable Care Act (H.R. 3590) was passed by the U.S. Senate on December 24, 2009. While it did not include Senator Amy Klobuchar’s (D-MN) neurology amendment, The Neuropathy Association will continue to work with the American Academy of Neurology this year to advocate for its inclusion during the reconciliation of the House and Senate versions of the health care bill.
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WCBS-NY Talks About Neuropathy
Dr. Holly Phillips, medical correspondent for WCBS-NY, recently interviewed Steve Smith (Manhattan support group leader), Mary Robertson (New Jersey support group leader) and Stephanie Cion (a young entrepreneur with CIDP) about their neuropathy experiences. |
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IVIG: A Life-Sustaining Treatment for Many
Members of Congress and patient advocacy groups including The Neuropathy Association recently announced the introduction of new legislation, meant to remedy inadequate Medicare reimbursements currently restricting patient access to IVIG.
Advocacy Alert: Help Restore Access to IVIG Now!
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NYC Neuropathy Week Proclamation Breakfast Event
Betsy Gotbaum, public advocate for the city of New York, was joined by patients and Association supporters to proclaim National Neuropathy Week 2009 in New York City during a breakfast event at O’Neals’ Lincoln Center restaurant on May 14. |
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Good Health: The Power of Volunteering
Mims Cushing, author of You Can Cope With Neuropathy: 365 Tips For Living A Full Life, recently spoke to New York City support group members to share her new book and to advocate for the importance of volunteering.
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The Neuropathy Association Announces 2009 Scientific Research Grants:
The Neuropathy Association has announced two awardees for its annual Scientific Research Grants Program. This year's grant recipients--Dennis Paul, Ph.D. and co-principal investigator, Harry J. Gould, M.D., Ph.D. of Louisiana State University Health Sciences Center New Orleans and Glaucia C. Furtado, Ph.D. of Mount Sinai School of Medicine--were chosen from thirteen applicants involved in neuropathy research at medical institutions across North America.
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First-Time National Poll Confirms Neuropathy Hits Millions In Their Prime
A new national Neuropathy Association poll of peripheral neuropathy patients finds that the majority of respondents had their neurological disease begin during their prime adult years, with 82% experiencing neuropathy's onset between the ages of 30-69.
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The H1N1 Flu: What You Need To Know About It
The recent outbreak of the new swine flu--officially known as the influenza A (H1N1) or the H1N1 flu--that began in Mexico almost two weeks ago continues to raise concerns globally as researchers examine the virus strain to figure out how and when it evolved.
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New Bill Offers Medicare Reimbursement Fix for Intravenous Immune Globulin (IVIG)
Members of Congress and patient advocacy groups including The Neuropathy Association announced recently the introduction of new legislation - H.R. 2002, Medicare Patient IVIG Access Act of 2009 - meant to remedy inadequate Medicare reimbursements that currently restrict patient access to Intravenous Immune Globulin (IVIG), a life-saving and life-enhancing therapy for many primary immunodeficiency diseases.
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American Academy of Neurology Publishes Guidelines for Distal Symmetric Polyneuropathy
The American Academy of Neurology has published new, evidence-based guidelines to support the most accurate diagnosis for distal symmetric polyneuropathy (DSP). Distal symmetric polyneuropathy is the most common form of peripheral neuropathy, a disorder of the peripheral nervous system affecting more than 20 million Americans.
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Research Grants Announced: "Understanding Autoimmune and Chemotherapy-Induced Neuropathies"
The Neuropathy Association recently announced two awardees for its annual Scientific Research Grants Program. Every year, The Neuropathy Association awards two scientific research grants. Each grant awards $80,000 allocated at $40,000 per year for a two year period. This year's grant recipients--Gary J. Bennett, Ph.D. of McGill University in Quebec, Canada and Hélène Bour-Jordan, Ph.D. and co-principal investigator, Mark S. Anderson, M.D., Ph.D. of the University of California, San Francisco Diabetes Center--were chosen from eleven research applicants working in the field of neuropathy research at prominent medical institutions across the U.S. and Canada.
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U.S. Congress Passes Genetic Nondiscrimination Act
The Neuropathy Association was one of the supporters joining the Coalition for Genetic Fairness in its efforts to ensure genetic information nondiscrimination. As a result of the advocacy efforts of the organizations joining the Coalition, the Coalition, the Genetic Information Nondiscrimination Act (GINA) was signed into law May 21, 2008.
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