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Advocating for Expanded Access to Biomedical Research Results
By Natacha T. Pires, MBBS

In an on-going effort to advocate for improved access to care and treatments as well as new treatments and cures for the neuropathy community, The Neuropathy Association recently issued an advocacy alert to its constituents, encouraging them to weigh in with the White House about the importance of transparency in federally funded biomedical research.

Stand Up For Neuropathy

As you may know, the National Institutes of Health (NIH) has a Public Access Policy that requires all NIH-funded research results to be available on the Internet no later than twelve months after publication.  This makes critical research information available to populations directly affected, including the neuropathy community.

The Neuropathy Association supports extending a similar open-access policy to all federal agencies that fund scientific research. Open-access policies for all federal agencies that fund scientific research will extend the reach of published biomedical research to a much broader audience—millions of physicians, public health officials, patients, students, teachers, scientists, and others. More importantly, it facilitates the sharing of cutting-edge research and best practices to improve patient care and the cross-fertilization of research findings across health care specialties, thereby accelerating our search for more and better treatments…and, ultimately, cures.

The petition, seeking input from the public], calling for public access to federally-funded research is posted on the White House's "We the People" website. To date, the petition has garnered more than 27,000 signatures. Once a petition on the White House's "We the People" site garners 25,000 signatures, White House staff will review it and issue a response.  We look forward to providing an update on the White House’s response to this important petition.

We thank everyone who participated in this advocacy campaign. Advocacy campaigns work best when there is a volume of many voices speaking up and out on an issue…when it come to making a change, how can you have your way if you don’t have your say? Be sure to participate in our advocacy alerts: let’s be sure we have the strength in numbers to be heard and to make a difference.

 

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